Even though we live this life, and I run a Facebook page about it – there are still moments that come out of nowhere and feel completely surreal to me.
Today I was reading a beautifully crafted, well-thought out e-mail from our therapist in regards to a little lesson she can give to the kids at daycare about autism…
A therapist is going to daycare to explain to the other children why Lila is so different – that she – our daughter – has autism.
I felt like I was having an out of body experience, having fleeting thoughts of the “before” times, when thoughts of this neuro-developmental disorder had not yet entered into our daily lives.
Yet here I am today, here at my full-time job: trying to sneak-read “Life, Animated”, work on new PECS cards for Lila, prepare for our home visit from the OK Healthcare Authority in regards to TEFRA approval, Google “autism” news/ articles/ studies as I have every single day for the past year and a half, and help Janet plan a lesson to help teach the other daycare children about autism.
I mean….. wait, what?
There never has been (and I suspect never WILL BE) time to truly digest ANY of this, and that’s probably for the best. We just keep going, keep working, keep fighting – always keep moving forward.